Therapy Timeline

The image below provides a timeline for clinic visits. As you can see, the first step in seeking information about the therapy and our program specifically requires contacting Dr. Borum. During this discourse, the patient's suitability for our program can be discussed along with any questions about the therapy or how our program is organized.

Thereafter, a pre-initation visit is scheduled in which further education is given prior to the initiation visit, in which the patient begins the therapy, both of these visits are explained in further detail below. The schedule for the remaining visits are outlined below. At each of these visits, a blood sample is drawn and anthropometric measurements are taken. In addition, one visit per year on therapy will include a 24-hour EEG recording, which will require an overnight stay.





              
                                       
Pre-Initiation

The Pre-Initiation clinic visit that occurs at the General Clinical Research Center (GCRC) in Shands at the University of Florida two to eight weeks before beginning the ketogenic therapy (KT).

During Pre-Initiation the caregiver(s) (CG) are provided with an educational session including take home education materials. Additionally, baseline data is collected including 24 hour EEG/video monitoring (if an EEG was not recently done), seizure type, frequency, severity and post-ictal state, medications, growth and anthropometric measurements, gastrointestinal issues, and indirect calorimetry to determine resting energy needs either the morning before or the morning after the visit. The CG is introduced to their KetoBuddy, the KetoGator team, and health care professionals at Pre-Initiation and provides them with an opportunity to meet and ask questions.

Also during Pre-Initiation, education materials are presented to the family such as an introduction to Ketogenic Therapy, how to make meals, how to take records, and how to create a meal equivalent. In addition, all of the volumes of the KetoGator Connection Newsletter are provided.

The Initiation clinic visit occurs at the General Clinical Research Center (GCRC) in Shands at the University of Florida in order to begin the process of ketogenic therapy.

During Initiation, the caregiver(s) are instructed and shown by example how to prepare and weigh meals to be administered as a part of the therapy. The process of initiation involves the gradual acclimation of the patient to a high fat. Meals are given at gradually greater ratios of grams of fat to grams of summed carbohydrates and protein until the proper ratio for ketogenesis and therapeutic effect is reached.

The first year of therapy is especially challenging for families. During the first year of therapy the body of the patient and the minds of the family must acclimate themselves to the rigorous process of properly administering a strict, ketogenic diet. During this initial period, the patient does not always see a reduction in seizures. Some patients see improvement in the first few days, others do not achieve the results they are looking for until after the end of the first year. Patience is key during this time, but interactions with our program and the patient's assigned ketobuddy help to facilitate this adjustment phase.

 

Ketogenic Therapy

Our Program

KetoGator Fund

Databases

Family Resources

Therapy Timeline

The Ketobuddy System

Shands Clinic

Meal Making

Newsletter

Ketogenic Links

 

Dr. Peggy R. Borum
University of Florida
FSHN Department
P. O. Box #110370
Gainesville, FL 32611-0370

409A FSHN Bldg
Newell Drive
UF Campus

prb@ufl.edu
Phone: 352-392-7553
Fax: 352-392-8957

 

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